To our surprise (I hear this is how it happens), Adelina has a tentative discharge some time this week if things go well. We had voiced our concerns and had a lengthy discussion with our nurse about what we can do to feel the most comfortable bringing her home. Unfortunately, the answer was that they are no guarantees but they feel that Adelina will be strong enough to recover on her own when she does have episodes. We will see about a monitor at our discharge meeting... I'll leave it at that for now.
She is growing well (still at 4lbs 2oz), so they also were to take her off of the fortifier in her milk. We hope she puts on weight without it and does not need to come home with it. She's most likely coming home with the vitamins and the priolsec. She will be supplemented with a higher calorie formula 1-2 times a day until the pediatrician thinks it can stop. She had to finish her a/m feeding by NG tube, but forcing a feed on her makes her weak.
Addy will still have to go through a hearing test, car seat test and a final eye exam for ROP. We will also meet to discuss her discharge and voice all concerns about monitors, drugs, feeding, etc. We are still in shock.
This is a hat from cousins Bridget, Doman & Olivia... Thanks guys! She's also wearing the outfit somewhere under that blanket.
3 comments:
It is wonderful that Addy will probably be able to come home this week! I'm keeping my fingers crossed that everything goes well and you're able to bring her home soon and hug and hold her all the time.
She is absolutely beautiful and I hope that your NICU journey is over soon.
YAY! I know you guys will be much more relaxed and comfortable at home! And Addy will too!
Heh Guys,
That is awesome that Addy will possibily be coming home this week!
She is beautiful and we don't think she looks like Vince at all!
We hope that things will continue to move forward for you guys and our thoughts are with you.
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