She's now on the final prescription formula and a round of antibiotics to try and eliminate any inflammation she may still have in GI tract. If she is still getting sick after that (2 weeks time), the we have the option to:
- Go with the feeding tube (NG tube) :P with the broken down formula so she can't reflux it and wait until her birthday to get scoped. Babies over 1 year can do the scoping as an outpatient in most cases, but under 1 year is quite the stay
- Get scoped now and stay at CHOP for an observation period and go from there - even though tube feed might be the answer anyway!
So come on Adelina - keep the milk down and get it together woman. We're all afraid of her damaging her throat and congesting her sinus cavity to the point where she's working too hard to breathe. The other big fear GI has is a repeat in the episode we had back in June... don't think we want to go there again.
We had similar issues with Gianna - and still are - with the reflux, but the difference is that Gianna did not have lung disease. Adelina's lungs are taking a hit from the congestion and since we're in RSV season and she already has BPD, we have to take every precaution to protect her. She's growing which is a good thing - up to almost 14 lbs now!
Nina Fox (Adelina's NICU pal) and Adelina during a supervised RSV quaratined play date! Adelina is either trying hard not to get sick on Nina OR Nina just made her punch herself in the face...
Yes, that is a barf on her shoulder and outfit #5 from that day in particular. Dreft is making a fortune off of our family.
3 comments:
That picture of Adelina and Nina is so cute! They are truely miracles! They look like they are best friends already!
She's so cute! Thanks for checking in on us!
Hope you guys have a Great Christmas and New Years!
I think I am gaining weight this holiday season at the same rate as Addy! She looks great as does Nina. Come on Addy - it would be one thing to hang out in hospitals all the time if I was still single and could scope out the docs (no pun intended...Ok puns always intended) - but this is not a good plan so stay strong!
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